Discharged

I arrived back in the hospital at 8:30am today and spent most of the day with my boy. He seems fine now.









He was attached to two pumps in the hospital: his regular feeding pump and a pump for his intravenous antibiotics.






He likes to use his feet to play with toys. And I suppose since they have turned his right hand into a club they really became his implements of choice for his hospital stay.

Eventually the paediatrician came to check on him and we went through a few things while she was there:

• His urine test showed that it was probably not a bladder or kidney infection
• His blood test showed negative for DiGeorge sequence (Association?)
• His previous MRI scan showed that the Auditory nerve appears to be missing to one of his ears but the canal is there and the Brainstem Auditory Response test shows that he does have some hearing in both ears so this information is a bit contradictory.
• The paediatrician reiterated that the information in the CHARGE manual about the 40% death rate for CHARGE babies with an NGTs did not apply to Raphael's case but that sometime in the future he will probably need to be fitted with a Gastrostomy Tube (see http://en.wikipedia.org/wiki/Feeding_tube) and have a Fundoplication (see http://en.wikipedia.org/wiki/Nissen_fundoplication)

We were discharged from hospital at 4:00pm with some antibiotics that we can give to Raphael through his NGT three times a day for the next five days.