Appointment with PEG nurse

A specialised nurse came to see us this morning, before the ENT appointment, about the procedures and practices involved with Percutaneous Endoscopic Gastrostomy (PEG) tubes.

She talked to us about:

• how the ways in which the procedures can be carried out,
• how to care for the tubes or "buttons" (including the regular maintenance),
• what to do in certain unexpected circumstances, and
  
• how feeding occurs through the tubes

Now it would be good to speak to Raphael's paediatrician again to find out exactly what they have in mind for Raphael with regard to the type of procedure and possible additional fundoplication.