We saw the orthoptist today and the conversation went something like this. Edited for brevity
After a bit of testing...
orthoptist: his right eye seems to be developing normally
me: should we patch him to see how his left eye is going?
orthoptist: he won't be able to see
me: I think it is worth a try
orthoptist: there is no point he wouldn't be able to see out of that eye because it is too abnormal
me: "you're wrong" (my exact words)
orthoptist: pardon?
me: "you're wrong!" (more exact blunt words)
orthoptist: ok, lets have a try to see what he can see
After a bit more testing with his right eye patched...
orthoptist: I am pleasantly surprised with what he can see with his left eye
me: it is a shame that he is not getting any vision from his left eye when his right eye is open
orthoptist: no he is getting peripheral vision from his left eye
me: I don't think so
After a bit more testing...
me: wow you are right!
After we saw the orthoptist we saw the ophthalmologist (eye doctor) and his general comments were that he was surprised as how the patching had been so successful in improving his vision in his left eye and that, even though his right eye was still the most important eye in terms of real vision for Raphael, it would be nice to get as much vision out of the left eye as we can.
He stressed the importance of not patching Raphael too much, so as to hinder the normal development of his good eye, but our current regime of 30-60 minutes of patching each day (when we remember, ie more like every other day) was not too much and as it had been so successful so far he encouraged us to continue with this method.
The bad news is that since the patching seems to have been at least partially successful we will have to keep on doing it. ie Because we have done all this hard work, we have more hard work to do [sigh].
Showing posts with label Orthoptist. Show all posts
Showing posts with label Orthoptist. Show all posts
Thursday, 31 July 2008
Thursday, 30 August 2007
Ophthalmologist and Orthoptist
An Orthoptist visit today confirmed that Raphael is not getting any usable vision from his left eye. But the good news is that his right eye seems to have good vision despite the small coloboma at the base of that eye.
There was not much to talk about with the ophthalmologist, so that was only a quick consultation. We talked about the possibilities of attaching the eye probing procedure to future surgeries because his last surgery was cancelled.
The longest part of this visit was actually trying to pay the bill, the new receptionist was hopeless, when she finally worked out what to do, she messed it up and had to do it all over again. I think it took about twenty minutes to pay the bill. I was not impressed becuase we had a tightly scheduled morning of twelve things to do at nine different locations. We still ended up managing all but two but I was so exhausted by the afternoon that I collapsed in my chair to sleep for two hours. Thank goodness that our ever-ringing phone didn't drill it's ring tone into my head while I was asleep.
There was not much to talk about with the ophthalmologist, so that was only a quick consultation. We talked about the possibilities of attaching the eye probing procedure to future surgeries because his last surgery was cancelled.
The longest part of this visit was actually trying to pay the bill, the new receptionist was hopeless, when she finally worked out what to do, she messed it up and had to do it all over again. I think it took about twenty minutes to pay the bill. I was not impressed becuase we had a tightly scheduled morning of twelve things to do at nine different locations. We still ended up managing all but two but I was so exhausted by the afternoon that I collapsed in my chair to sleep for two hours. Thank goodness that our ever-ringing phone didn't drill it's ring tone into my head while I was asleep.
Monday, 4 June 2007
Ophthalmologist 2nd opinion
This afternoon we took Raphael to RHH to see an orthoptist and to get a second opinion from an ophthalmologist, who has specific experience in genetic and paediatric ophthalmology.
The orthoptist tested Raphael's vision with rather peculiar grey boards with black and white stripy lines on one side and a tiny hole in the middle to look through from behind. She span the board around till I felt dizzy and then stopped and looked though the little hole from behind to see if Raphael looked at the side of the board with the stripes. She repeated this with boards that had finer and finer stripes until she declared that Raphael's vision appears to be quite good; at least the vision out of his good eye is quite good anyway.
The ophthalmologist consultation was very interesting. The result from the pressure test on the 18/4/2007 was that the pressure in his right eye was 15mmHg (this is well within the safe range). He examined Raphael and said that Raphael had a coloboma in his right eye as well as the left. This right eye coloboma was small and very low down which meant that it would probably only effect the very top of Raphael's vision. He also recommended that Raphael's tear ducts only be probed and not flushed when they are examined in his coming surgery.
Topics covered:
The orthoptist tested Raphael's vision with rather peculiar grey boards with black and white stripy lines on one side and a tiny hole in the middle to look through from behind. She span the board around till I felt dizzy and then stopped and looked though the little hole from behind to see if Raphael looked at the side of the board with the stripes. She repeated this with boards that had finer and finer stripes until she declared that Raphael's vision appears to be quite good; at least the vision out of his good eye is quite good anyway.
The ophthalmologist consultation was very interesting. The result from the pressure test on the 18/4/2007 was that the pressure in his right eye was 15mmHg (this is well within the safe range). He examined Raphael and said that Raphael had a coloboma in his right eye as well as the left. This right eye coloboma was small and very low down which meant that it would probably only effect the very top of Raphael's vision. He also recommended that Raphael's tear ducts only be probed and not flushed when they are examined in his coming surgery.
Topics covered:
- Raphael's general vision
- Colobomas
- Eye pressures
- Probing and flushing tear ducts at next surgery
- What can be done to help his left eye
- Retinal detachment
- Critical developmental ages for eyes
- Eye sizes
- Optic nerve hypoplasia and micropthalmia
- Type of eye specialists
- potential treatments in the future
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