Last night we received a phone call from the surgical unit at RHH saying that they have somehow managed to line up the four procedures that we had been preparing for:
- Grommets
- ABR
- CT scan
- G-Tube (or PEG)
I was excited to hear this news but later that night my sleep was very restless, I kept going through the whole thing in my mind and wondering whether it would be the right decision to go ahead with all of these procedures at once. For CHARGE syndrome kids I have read that it is a good idea to combine procedures under a single general anaesthetic. But having said that, consultations with specialists reveal that long anaesthetics have their own considerable risk.
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