Raphael in CHARGE
Friday 13 April 2007
Confirmed not doing G-tube
Raphael's Paediatrician's rooms called us to confirm that our paediatrician does not want to proceed with the fitting of the G-tube at this time.
No comments:
Post a Comment
Newer Post
Older Post
Home
Subscribe to:
Post Comments (Atom)
Blog Archive
►
2015
(1)
►
November
(1)
►
2013
(1)
►
February
(1)
►
2012
(1)
►
October
(1)
►
2011
(2)
►
September
(2)
►
2010
(12)
►
November
(1)
►
October
(1)
►
September
(3)
►
August
(2)
►
June
(1)
►
May
(2)
►
February
(2)
►
2009
(19)
►
October
(1)
►
July
(1)
►
May
(3)
►
April
(3)
►
March
(2)
►
February
(1)
►
January
(8)
►
2008
(58)
►
December
(2)
►
November
(2)
►
October
(1)
►
September
(5)
►
August
(3)
►
July
(3)
►
June
(8)
►
May
(4)
►
April
(5)
►
March
(5)
►
February
(9)
►
January
(11)
▼
2007
(215)
►
December
(10)
►
November
(9)
►
October
(10)
►
September
(11)
►
August
(15)
►
July
(17)
►
June
(26)
►
May
(29)
▼
April
(27)
Getting milk and bags
Hearing aid adjustment
Putting things on things
More language development and a game
Two new notable developments for language
Finished beginners Auslan course
Hearing aids
Results of post grommets ABR
Discharged after the four procedures
The four procedures
Admitting to hospital
Ophthalmologist
Another sign
Consenting to the procedures
Confirmed not doing G-tube
Not doing G-tube now
Pre-admission clinic
Pre-admission time booked
Four procedures under the one GA
Yet another NGT
Another sign
Some development
ELT consulation
Another dodgy plug on the NGT
Hi five
Four appointments today
Crawling to explore
►
March
(36)
►
February
(20)
►
January
(5)
►
2006
(28)
►
December
(3)
►
November
(8)
►
October
(3)
►
September
(3)
►
August
(1)
►
June
(1)
►
May
(7)
►
March
(2)
Education Professionals
Deaf/Blind teacher [RIDBC]
Gross motor skills teacher [gymbaroo]
Hearing consultant
Occupational therapist [ELT]
Physiotherapist [ELT] (x2)
Speech pathologist [ELT] (x2)
Teacher [ELT] (x3)
Teacher of the deaf [ELT] (x3)
Vision consultant [ELT]
Medical Professionals
Audiologist [RHH & Aus Hearing]
Dentist
Dietician (x2)
Ear Nose and Throat Doctor (ENT) (x3)
Endocrinologist
General Practitioner
Geneticist
Intensivist (x2) [RHH]
Occupational therapist [CHC]
Ophthalmologist (eye surgeon) (x3)
Orthoptist [RHH & Hobart Eye Surgeons]
Osteopath
Paediatric Anaesthetist (x2)
Paediatric Cardiologist
Paediatric home care nurse (x2) [RHH]
Paediatric Surgeon
Paediatrician (x3)
Physiotherapist [CHC]
Social worker [CHC]
Speech Pathologist [RHH (x2) & CHC & Speech Pathology Tasmania (x2)]
CHARGE Specific Websites
CHARGE Syndrome Association of Australasia
CHARGE Syndrome Foundation (USA)
CHARGE Family Support Group (UK)
CHARGE Syndrome Canada
German CHARGE Syndrome Forum
German CHARGE Syndrome Forum (google translated)
Australian Deaf/Blind services
Able Australia
Association for Children with a Diability (there is a hobart branch in Bathurst street)
Auslan (Australian Sign Language)
Australian Hearing
Bilby Publishing and Consulting (Auslan resources)
Deaf Children Australia
Deafness Resources Australia
Early Learing Tasmania (Department of Education)
Royal institute for deaf and blind children
TasDeaf - Tasmanian Deaf Society
Other peoples personal CHARGE sites
http://begasfamily.blogspot.com/
http://benrusso.blogspot.com/
http://cameronandrew.blogspot.com/
http://cameronwoweeandrew.blogspot.com/
http://cedielynn.blogspot.com/
http://chargesyndrome.blogspot.com/
http://dylanupdate.blogspot.com/
http://ellencharger.blogspot.com/
http://evanichole.blogspot.com/
http://evanstorrs.blogspot.com/
http://kauffmanlak.blogspot.com/
http://littlemissevie.blogspot.com/
http://maxupdate.blogspot.com/
http://mightymaxupdate.blogspot.com/
http://mkweindorf.blogspot.com/
http://superjack916.blogspot.com/
http://www.caringbridge.org/visit/tateyoung
http://www.lukejosephsnyder.blogspot.com/
http://www.twochargekids.com/
Other Links
Gymbaroo Tasmania (Sandy Bay)
Gymbaroo
OMIM database entry on CHARGE syndrome
No comments:
Post a Comment