This morning We had an appointment at the hospital for our other son. This just so happened to be with the same surgeon who is scheduled to perform Raphael's coming surgery.
We had Raphael with us and at one point the Surgeon stopped and commented on the nasty cough that Raphael has barking. He said that this might be an issue for his surgery next week. When we said that we were happy for Raphael's preferred anaesthetist to make that decision on the day before the surgery the surgeon replied by saying that the anaesthetist in question would be on leave, and would not be back for seven weeks. Annie and I were dumbfounded. We thought that we had already confirmed that Raphael's anaesthetist would be available and so we didn't know what to say. Later the surgeon confirmed for us that particular anaesthetist would definitely not be available.
Due to an administrative error we still had a paediatrician appointment today that should have been cancelled. So we took advantage of this appointment and had a consultation with our paediatrician about what we were going to do. She was a little concerned about his current cold symptoms and so this, mixed with the absence of Raphael's anaesthetist, resulted in her suggesting that we wait until after his anaesthetist is back. Annie and I were relieved with this assessment.
While we waited between the two appointments we made two impromptu appointments with the hospital social worker (to ask about respite options) and dietician (to talk about his weight gain and dietary requirement).
Showing posts with label Paediatric surgeon. Show all posts
Showing posts with label Paediatric surgeon. Show all posts
Thursday, 7 June 2007
Thursday, 10 May 2007
Still in hospital
Yesterday we saw a paediatric surgeon about the possibility of performing a laparotomic (open) G-tube insertion and fundoplication.
The ENT registrar also visited to ask about the mysterious neck which had been ordered for Raphael. Like us, they seem to be unsure why this has been ordered. I actually think that there was a miscommunication somewhere and that it was supposed to be ordered for our other son Zachariah. He also commented that the CT scan showed some evidence of congenital cholesteatoma but he probably does not have this. It will continue be monitored and we will talk more about this at the next ENT consultation.
We attempted to connect for his afternoon sleep but he would not tolerate it again. It seems at though we are not going to have any success with his afternoon sleeps. I was exhausted and so I went home to sleep and while I was out I missed our paediatrician who came around to see us (rats).
Last nights CPAP was good. The intensivist made some adjustment to the mask by hacking at it with a pair of scissors becuase she said that it was probably the mask blocking his nose that was causing the unknown desaturations the previous night. He woke up four or five times last night, panicking with the air flow across his face but had no desaturations. His blood oxygen saturation level was consistently around 97%. They said that they will not send us home with this mask because it is not safe now. They have tried three masks so far but they will keep trying to find better ones.
The intensivist has increased the CPAP level to 9CWP (centimetres of water pressure). This seems to be enough to overcome his obstructive snore. This level of pressure is getting up to the level where we start to have to monitor his facial development. High levels of CPAP can push the front facial bones back during growth. The intensivist is interested to know how much the NGT is effecting the efficiency of the CPAP. We may have to do further adjustment of pressure after the NGT is replaced with a G-tube. This is what his profile looks like now
The ENT registrar also visited to ask about the mysterious neck which had been ordered for Raphael. Like us, they seem to be unsure why this has been ordered. I actually think that there was a miscommunication somewhere and that it was supposed to be ordered for our other son Zachariah. He also commented that the CT scan showed some evidence of congenital cholesteatoma but he probably does not have this. It will continue be monitored and we will talk more about this at the next ENT consultation.
We attempted to connect for his afternoon sleep but he would not tolerate it again. It seems at though we are not going to have any success with his afternoon sleeps. I was exhausted and so I went home to sleep and while I was out I missed our paediatrician who came around to see us (rats).
Last nights CPAP was good. The intensivist made some adjustment to the mask by hacking at it with a pair of scissors becuase she said that it was probably the mask blocking his nose that was causing the unknown desaturations the previous night. He woke up four or five times last night, panicking with the air flow across his face but had no desaturations. His blood oxygen saturation level was consistently around 97%. They said that they will not send us home with this mask because it is not safe now. They have tried three masks so far but they will keep trying to find better ones.
The intensivist has increased the CPAP level to 9CWP (centimetres of water pressure). This seems to be enough to overcome his obstructive snore. This level of pressure is getting up to the level where we start to have to monitor his facial development. High levels of CPAP can push the front facial bones back during growth. The intensivist is interested to know how much the NGT is effecting the efficiency of the CPAP. We may have to do further adjustment of pressure after the NGT is replaced with a G-tube. This is what his profile looks like now
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