Raphael was subjected to some needles this morning involving an intramuscular testosterone injection and taking 12ml of blood for tests (thyroid, haemachromatosis, and CHD7 genetic test).
I am sure that they had previously taken blood for CHD7 genetic testing and I was surprised to see that it had been added to the list of things that blood was being taken for. But when I grilled them about this the kind nursing staff checked the records and could find not find any blood being kept for Raphael's genetic testing so it would have to be done anyway.
He has previously been very difficult to get blood from and I don't think that the registrar who came in to do the job had successfully taken blood from Raphael before. However, this was the most successful time ever and Raphael didn't even vomit when he was distressed about what was being done to him.
Showing posts with label Taking blood. Show all posts
Showing posts with label Taking blood. Show all posts
Thursday, 24 January 2008
Wednesday, 21 February 2007
Anaesthetist consultation
We had a long consultation with another anaesthetist today (he is a very patient man fortunately). He will be the anaesthetist who will perform Raphael's next general anaesthetic.
I am not going to cover everything that we talked about. He fortunately let us record his consultation so Annie and I can refer to it again before our next anaesthetic consultation.
The next general anaesthetic will be for a potential mix of the following procedures:
Grommets
Grommets are still the high priority to get his hearing improved. Hearing is so important for language development that this will happen as soon as possible.
Taking Blood
While he is under it is a good opportunity to take some blood for tests. There will be some blood taken to test for DiGeorge sequence (I think that is what it is called - to do with immune response), and some blood taken for possible future gene testing. I think there is another vial to be taken too but I can't remember what that one was for.
CT scan
Now that we have an official diagnosis of CHARGE syndrome there doesn't seem to be need to do this scan. Originally it was going to be used to clarify some of the findings from the MRI. the paediatrician will talk with the ENT as to whether there are any additional benefits, from a hearing perspective, that would be gained from doing a CT scan.
Endoscope
The ENT said that the next time Raphael has a GA it would be a good time to do a thorough examination of his throat with an endoscope. When we questioned the anaesthetist about this he said that it can increase the risk of complications because the extra probing from the endoscope may induce more swelling than otherwise might happen. Effectively this would just be another risk that would need to be managed at the time.
Auditory Brainstem Responses test
Initially Annie and I were keen on the possibility of having another ABR immediately after the grommets were inserted, while still under GA but since:
(edited 10/3/2007):
Here is a list of the topics covered in this consultation:
I am not going to cover everything that we talked about. He fortunately let us record his consultation so Annie and I can refer to it again before our next anaesthetic consultation.
The next general anaesthetic will be for a potential mix of the following procedures:
- Grommets
- Taking blood
- CT scan
- Endoscope of the larynx
- Auditory brainstem responses test
Grommets
Grommets are still the high priority to get his hearing improved. Hearing is so important for language development that this will happen as soon as possible.
Taking Blood
While he is under it is a good opportunity to take some blood for tests. There will be some blood taken to test for DiGeorge sequence (I think that is what it is called - to do with immune response), and some blood taken for possible future gene testing. I think there is another vial to be taken too but I can't remember what that one was for.
CT scan
Now that we have an official diagnosis of CHARGE syndrome there doesn't seem to be need to do this scan. Originally it was going to be used to clarify some of the findings from the MRI. the paediatrician will talk with the ENT as to whether there are any additional benefits, from a hearing perspective, that would be gained from doing a CT scan.
Endoscope
The ENT said that the next time Raphael has a GA it would be a good time to do a thorough examination of his throat with an endoscope. When we questioned the anaesthetist about this he said that it can increase the risk of complications because the extra probing from the endoscope may induce more swelling than otherwise might happen. Effectively this would just be another risk that would need to be managed at the time.
Auditory Brainstem Responses test
Initially Annie and I were keen on the possibility of having another ABR immediately after the grommets were inserted, while still under GA but since:
- The anaesthetist said that this extra long time that he would spend under GA (at least another half an hour, could be an hour) would add risk to the procedure,
- The ABR can be performed on a sleeping baby, and
- He might have to be moved to another theatre for that particular procedure,
(edited 10/3/2007):
Here is a list of the topics covered in this consultation:
- Previous Anaesthetic for MRI
- Proposed Endoscope
- Risks of procedure/s
- Method of Anaesthesia for his condition
- Heart defects
- Kidney abnormalities
- Feeding frequency
- Cold viruses
- When and how long to admit to hospital
- Anaesthetic versus sedation
- Resistance and unexpected reaction to anaesthetics
- What procedures will be performed
- Access to anaesthetist notes
- CPAP usage
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